Author: Jessica Fjeld, Adam Nagy; Publisher: Berkman Klein Center; Publication Year: 2020. The following paper describes and explains 9 principles of ethical data practices: Informed consent of data subjects, security of data, anonymization, transparency, diversity, bias, prominence and communication. The principles listed in this framework cover 4 essential values of ethical data practices: Fairness, benefit, openness and reliability…
Author: Roxana Willis; Publisher: SAGE Journals; Publication Year: 2017. The following article examines the difficulties of obtaining informed consent online through a Facebook case study. It is proposed that there are at least 2 ways informed consent could be waived in research: first, if the data are public, and second, if the data are textual…
Author: N/A; Publisher: LGBT Foundation; Publication Year: N/A. The following article is a guide to navigating ethics issues that can arise when performing research (specifically on members of the LGBT community). The guide is split up into 5 sections: 1). Integrity and quality: researchers must ask themselves if they have the skills necessary for this research and whether they have sufficient understanding of the…
Author: Christian Ofori-Boateng; Publisher: Forbes; Publication Year: 2020. The following article discusses how, for businesses, data represents customers, and customers drive profit. It’s easy for a business to be distracted by company profits and less concerned about safeguarding customer information. A Lack of data risk mitigation could significantly impact a business’s future. To…
Author: Daniel John; Publisher: BBC Reel; Publication Year: 2020. The following video discusses how Henrietta Lacks’ cells were taken without informed consent and then became the foundational cells for innumerable medical research and innovation, and “there is not one person who has not benefitted from her cells.” A quick overview of one of the most original examples of…
Author: Adriene Hill; Publisher: Crash Course; Publication Year: 2019. The following video provides important background on the context and consequences of data-driven research relative to the foundational elements of statistics. It also provides links to historical instances of data abuse to the current problems with data ethics and privacy. It challenges the reader to ponder questions…
Author: A. Michael Froomkin; Publisher: Yale Journal of Health Policy, Law & Ethics, and Yale Journal of Law & Technology; Publication Year: 2019. The following article focuses on how a regulation was changed in 2019 to revise what it means for the requirement of informed consent. Now that companies collect data virtually everywhere and data scientists are trying to find correlations in virtually anything i.e. Machine Learning algorithms clustering people in an uneasily…