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John Wilbanks: Let’s Pool Our Medical Data
lnbressa
Author: John Wilbanks; Publisher: TED; Publication Year: 2012. The following speech gives an overview of the process of medical methodology and getting informed consent and how this has changed over time. The author discusses how informed consent can actually unintentionally prevent innovation. Specifically, in the health field, prior data for things such as cancer is…
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How Companies Learn Your Secrets
lnbressa
Author: Charles Duhigg; Publisher: The New York Times; Publication Year: 2012. The following article describes how every time you interact with a company, they learn and record information about you, from demographic details to shopping habits and everything in between. They do this in order to more efficiently market towards individuals and create predictive models…
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Conducting Research with Tribal Communities: Sovereignty, Ethics, and Data-Sharing Issues
Author: Anna Harding, Barbara Harper, Dave Stone, Catherine O’Neill, Patricia Berger, Stuart Harris, Jamie Donatuto Publisher: Environmental Health Perspectives Publication Year: 2012 Summary: The following paper reviews sovereignty, research ethics, and data-sharing considerations when approaching community-based research with American Indian nations. They have a data-sharing agreement available to view that meets tribal and university requirements.…
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