Data Ethics Repository

Category: 2012

John Wilbanks: Let’s Pool Our Medical Data

Consent, Data Privacy, Ethical Research, Innovation, Medical Methodology

Author: John Wilbanks; Publisher: TED; Publication Year: 2012. The following speech gives an overview of the process of medical methodology and getting informed consent and how this has changed over time. The author discusses how…
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How Companies Learn Your Secrets

Data Collection, Predictive Analytics, Pregnancy, Target, Targeted Marketing

Author: Charles Duhigg; Publisher: The New York Times; Publication Year: 2012. The following article describes how every time you interact with a company, they learn and record information about you, from demographic details to shopping…
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Conducting Research with Tribal Communities: Sovereignty, Ethics, and Data-Sharing Issues

Data Collection, Data Sharing, Reporting, Research Ethics, Scientific Capacity, Sovereignty

Author: Anna Harding, Barbara Harper, Dave Stone, Catherine O’Neill, Patricia Berger, Stuart Harris, Jamie Donatuto Publisher: Environmental Health Perspectives Publication Year: 2012 Summary: The following paper reviews sovereignty, research ethics, and data-sharing considerations when approaching…
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