Tag: Informed Consent
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Ethical issues surrounding research of AI in healthcare
Click here to access original source Author: F. Lisa Murtha, Pralika Jain and Kiyong Song Publisher: Reuters Year: 2022 Summary: This article focuses on the ethical impact that implementing AI in healthcare is having on…
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Use of patient registries during public health emergencies
Click here to access original source Author: AMA staff Publisher: American Medical Association Year: 2020 Summary: This AMA publication discusses the balancing act between individuals’ well-being and community well-being when it comes to medical data,…
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Principled Artificial Intelligence
Anonymization, Benefit, Communication, Data Security, Fairness, Informed Consent, Openness, Prominence, Reliability, TransparencyAuthor: Jessica Fjeld, Adam Nagy; Publisher: Berkman Klein Center; Publication Year: 2020. The following paper describes and explains 9 principles of ethical data practices: Informed consent of data subjects, security of data, anonymization, transparency, diversity,…
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Observations Online: Finding the Ethical Boundaries of Facebook Research
Author: Roxana Willis; Publisher: SAGE Journals; Publication Year: 2017. The following article examines the difficulties of obtaining informed consent online through a Facebook case study. It is proposed that there are at least 2 ways…
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Ethical research: goodpractice guide toresearching LGBTcommunities and issues
Anonymity, Coercion, Confidentiality, Informed Consent, Integrity, LGBTQIA+, Voluntary ParticipationAuthor: N/A; Publisher: LGBT Foundation; Publication Year: N/A. The following article is a guide to navigating ethics issues that can arise when performing research (specifically on members of the LGBT community). The guide is split…
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Your Big Data Responsibility: The Rise In Data Ethics
Algorithmic Audit, Company Profits, Consent, Customer Data, Design, Evaluation, Informed Consent, risk mitigation, TransparencyAuthor: Christian Ofori-Boateng; Publisher: Forbes; Publication Year: 2020. The following article discusses how, for businesses, data represents customers, and customers drive profit. It’s easy for a business to be distracted by company profits and less…
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Henrietta Lacks: The ‘Immortal’ Cells That Changed the World – BBC REEL
Author: Daniel John; Publisher: BBC Reel; Publication Year: 2020. The following video discusses how Henrietta Lacks’ cells were taken without informed consent and then became the foundational cells for innumerable medical research and innovation, and…
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Henrietta Lacks, the Tuskegee Experiment, and Ethical Data Collection
Beneficence, Coercion, Current Problems, Data Abuse, Data Collection, Data-Driven Research, Henrietta Lacks, Informed Consent, Privacy, Statistics, Tuskegee Experiment, VoluntarinessAuthor: Adriene Hill; Publisher: Crash Course; Publication Year: 2019. The following video provides important background on the context and consequences of data-driven research relative to the foundational elements of statistics. It also provides links to…
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Big Data: Destroyer of Informed Consent
Big Data, Data Collection, Data Science Studies, Data Scientists, Informed Consent, Machine Learning Algorithms, Regulation, VirtualAuthor: A. Michael Froomkin; Publisher: Yale Journal of Health Policy, Law & Ethics, and Yale Journal of Law & Technology; Publication Year: 2019. The following article focuses on how a regulation was changed in 2019…