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Scientists Are Just as Confused About the Ethics of Big-Data Research as You
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Author: Sarah Zhang; Publisher: Wired; Publication Year: 2016. The following article discusses how ethical boundaries for data researchers are still developing as data research is still an emerging field. Under the Common Rule in the U.S., federally funded research has to go through ethical review. Rather than one unified system, though, every single university has…
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‘‘But the Data is Already Public’’: On the Ethics of Research in Facebook
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Author: Michael Zimmer; Publisher: Springer Science+Business Media B.V.; Publication Year: 2010. The following paper articulates a set of ethical concerns that must be addressed before embarking on future research in social networking sites, including the nature of consent, properly identifying and respecting expectations of privacy on social network sites, strategies for data anonymization prior to…
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Working Through Ethics Review of Big Data Research Projects: An Investigation into the Experiences of Swiss and American Researchers
Author: Maddalena Favaretto, Eva De Clercq, Matthias Briel, Bernice Simone Elger; Publisher: National Library of Medicine; Publication Year: 2020. The following article discusses the differences between Swiss and U.S. in terms of ethics committees and institutional review board (IRB) regulations for collecting human subjects research data. Although the IRB does take into account ethical considerations…
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Ethics of Collecting and Using Healthcare Data
2007, Code of Ethics, Communities of Practice, Diversity, Equity & Inclusion, Frameworks, Notable People, Research Articlelnbressa
Author: Derick Wade; Publisher: National Library of Medicine; Publication Year: 2007. The following article discusses how ethical review committees are helpful, but the ultimate responsibility of ethical data use in healthcare falls to those organizations acquiring and examining the data. In many cases involving healthcare research, explicit consent is not required from the data subject.…
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